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Resource Guide for Myelodysplastic Syndrome (MDS)
Internet address: http://www.cancer.org
Description of services provided: The American Cancer Society is a nationwide organization with more than 3,400 local offices. This site provides information on preventing cancer, saving lives, and diminishing suffering from cancer. Here you will also find information on research, education, advocacy, and service.
Internet address: http://www.acor.org/
Description of services provided: This site offers publications, disease-specific information, clinical trial information, mailing lists, and lists of caregiver and referral services.
Address: 275 7th Avenue New York, NY 10001
Phone: 1-212-712-8400 1-800-813-HOPE (4673)
Internet address: http://www.cancercare.org/
Description of services provided: Cancer Care Inc. provides free professional help to people with all forms of cancer through counseling, education, information, referral, and direct financial assistance.
Address: NCI Public Inquiries Office Suite 3036A 6116 Executive Boulevard, MSC 8322 Bethesda, MD 20892-8322
Phone: 1-800-4-CANCER (1-800-422-6237)
Internet address: http://cancer.gov/
Description of services provided: The National Cancer Institute provides information on clinical trials, statistics, research programs, research funding, and many other matters relating to cancer, including MDS.
Address: 1900 M Street, NW, Suite 200 Washington, DC 20036
Internet address: http://www.hematology.org/
Description of services provided: The mission of the American Society of Hematology (ASH) is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic, and vascular systems. The organization accomplishes this mission by promoting research, clinical care, education, training, and advocacy in hematology.
Address: PO Box 353 Crosswicks, NJ 08515
Phone: 1-800-MDS-0839 1-609-298-6746 (outside US)
Internet Address: http://www.mds-foundation.org/
Description of services provided: Created to "provide an ongoing exchange of information related to MDS," the Foundation offers news, including upcoming legislation, recommended medical centers for treatment, research results, and a listing of links to related websites. The "Patient Information" page covers Medicare, government assistance, medication assistance, as well as information on medications. You can also find a patient handbook and other articles.
- Reviewer: Mohei Abouzied, MD
- Review Date: 03/2013
- Update Date: 03/15/2013